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Research Participation

Participate in Research | Brain Donation | Clinical Trials

Great strides have been made in recent years in understanding the cause(s) of narcolepsy, but much work remains to be done. Your participation in research studies will help researchers to unravel the mysteries that remain.

Research projects currently seeking participants:

Oliver Sacks, M.D.
Dr. Sacks is researching for a new book in which he plans to write about hallucinations of near-sleep and narcoleptic states.  Any member of the Network may write to him about their experiences in this area.  The address is mail@oliversacks.com
 

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Body Weight Regulation in Patients with Narcolepsy

 

Stanford University’s Center for Narcolepsy

  • Currently recruiting African Americans with narcolepsy for Blood Study. Patients may or may not have cataplexy. Participants will be asked to complete a questionnaire, provide copies of their sleep-related medical records and arrange locally for a blood sample to be sent to the Center for Narcolepsy via prepaid FedEx for HLA typing. Please call for more information: 650-721-7550
  • Currently recruiting persons with narcolepsy for genetic studies and hypocretin measurement studies. Contact Mali Einen, Clinical Research Coordinator, at 650-721-7550.

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Date Created: July 23rd, 2008
Last Updated: November 19th, 2010