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Narcolepsy: Links

ORGANIZATIONS
National Sleep Foundation
Information on Sleep and Sleep Disorders:
www.sleepfoundation.org
Sign up for NSF Newsletter:
http://www.sleepfoundation.org/alert.html 

American Academy of Sleep Medicine  
Listing by state of accredited member Sleep Centers (Contact AASM for list of  non-member accredited sleep centers):
www.aasmnet.org 

American Board of Sleep Medicine  
Listing by state of doctors certified in sleep medicine:
http://www.absm.org/Diplomates/listing.htm  NORD  (National Organization for Rare Disorders)  
Information, medication assistance:
www.rarediseases.org   

SLEEP CENTERS 
Stanford Center for Narcolepsy  
Comprehensive information, research, publications, cataplexy video, and medications:
http://www-med.stanford.edu/school/Psychiatry/narcolepsy/ 

The Sleep Site       
Information, support:
www.thesleepsite.com 

Center for Narcolepsy Research  
Information, support, research opportunities:
http://www.uic.edu/depts/cnr   

OTHER SLEEP SITES 
SleepNet  
Information, newsletters, forums, links:
http://www.sleepnet.com/ 

Sleep Medicine Home Page  
Comprehensive List of Links to Sleep-related sites:
http://www.cloud9.net/~thorpy 

Talkaboutsleep.com  
Information, news, chats, message boards, disability:
www.talkaboutsleep.com 

Eye On Sleep 
The web's premier sleep-related eZine:
http://info-wrks.com/eyeonsleep/ 

RESEARCH 
Sleep Research Online  
Sleep Research Articles:
http://www.sro.org/ 

Naps e-mail Alerts  
Topical listing of current research in sleep medicine:
http://www.websciences.org/bibliosleep/naps/ 

Medscape  
Research database:
www.medscape.com 

Bibliosleep  
Sleep Research Articles:
http://www.websciences.org/bibliosleep 

The Sleep Well  
Information and links:
http://www.stanford.edu/~dement/  

Findarticles.com  
Locate articles on narcolepsy:
http://www.findarticles.com  

Center for Sleep Research - Siegel Lab  
Extensive list of published research on narcolepsy and sleep:
http://www.bol.ucla.edu/~jsiegel/ 

MEDICATIONS & TREATMENT 
Practice Parameters in the Treatment of Narcolepsy (2001)  
Article from the AASM's Journal SLEEP on medications used to treat narcolepsy:
http://www.guideline.gov/summary/summary.aspx?ss=6&nbr=2159&doc_id=293 

Stanford Center for Narcolepsy  
Most up-to-date list of medications prescribed in the treatment of narcolepsy. Click on “Medications” tab at:
http://www-med.stanford.edu/school/Psychiatry/narcolepsy/ 

RxList.com  
Full prescribing Information on medications:
www.rxlist.com 

Needy Meds
For those in need of financial assistance with prescriptions meds:
www.needymeds.com  

PATIENT STORIES
People with Narcolepsy in the News

PATIENT WEBSITES 
Narcolepsy - A Sleep Disorder
Melody's Website: http://www.cataplexic.com 

Narcolepsy Information
Kristina's Website: home.insightbb.com/~narcolepsy_indiana/

OTHER SLEEP DISORDERS
American Sleep Apnea Association
Information and Support for Patients with Sleep Apnea
www.sleepapnea.org

Restless Legs Foundation
Information and Support for Patients with Restless Legs and/or Periodic 
Limb Movement Disorder
www.rls.org 

DISABILITY RESOURCES         
Social Security Disability Programs
SSDI and SSI
www.ssa.gov

Job Accommodation Network
http://janweb.icdi.wvu.edu/

ADA Homepage
Americans with Disabilities Act
http://www.usdoj.gov/crt/ada/adahom1.htm

Education
Laws protecting against discrimination
http://www.ed.gov/offices/OCR/index.html

Education - IDEA
IDEA resources
http://www.ideapractices.org/about/fape.php

Employment
Laws protecting against discrimination
http://www.eeoc.gov/

Housing
Laws protecting against discrimination
http://www.hud.gov/offices/fheo/FHLaws/index.cfm

Short Course on Disability
User-friendly guide to disability rules and pitfalls to avoid
http://www.talkaboutsleep.com/sleepbasics/medicare_disabilitycourse.htm

Social Security Disability Secrets
Tips from a former disability examiner
http://www.disabilitysecrets.com

DRIVING
Licensing Provisions
Motor Vehicle Laws by State
http://www.law.cornell.edu/topics/state_statutes3.html#motor_vehicles 


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