SUBSCRIBENationwide Shortage of Ritalin, Adderall
A nationwide shortage of the active ingredients in Ritalin (Methylphenedate) and Adderall (Mixed Amphetamine Salts) has made it difficult for many people to get their prescripions for these medicines and their generic counterparts filled. See video and complete story
Finland finds link between H1N1 vaccine and increased narcolepsy risk
A preliminary report from Finnish health official said the apparent link between Pandemrix 2009 H1N1 Influenza vaccine and a sudden increase in cases of narcolepsy in children appears to be real. Pandemrix is made differently from the flu vaccine used in the United States which has not been linked to narcolepsy. Click here to read the entire story.
MTV seeking “True Life” subjects
If the following ad interest you please reply directly to that project. NN in no way endorses these projects and receives no compensation, this is presented for informational purposes only. MTV Do you suffer from narcolepsy with cataplexy? Does the chronic sleep disorder prevent you from living a normal life? Do you fall asleep at [...]
Narcolepsy Network Advocates on Capitol Hill for Increased NIH Funding
PRESS RELEASE
WASHINGTON, DC, October 8, 2010 The Narcolepsy Network will bring a group of over 40 narcolepsy patient advocates to Capitol Hill on Friday October 8, in an effort to raise awareness about narcolepsy among congressional leaders.
Europeans move to restrict the use of Modafinil
Due to increasing concerns of abuse the European Medicines Agency recommended on July 22, 2010 that the use of Modafinil (Provigil, et al) be restricted to the treatment of Narcolepsy. Read the news report, click on this link: http://www.salient-news.com/2010/09/provigil-cephalo/
Preliminary report from Sweden, No link between Vaccine and Narcolepsy
In a preliminary report by Swedish regulators no link has been found between Pandemix, the H1N1 Swine Flu Vaccine used in Europe, and new cases of narcolepsy. These are not the completed reports from the European Medicines Agency which has only begun its investigation. It must also be stressed that the vaccines used in Europe often [...]
Europeans Review Possible H1N1 Vaccine -Narcolepsy Link
The European Medicines Agency has launched a review of Pandemrix on the request of the European Commission to investigate whether there is a link between cases of narcolepsy and vaccination with Pandemrix. Read Story
Jazz turned down by FDA Advisory Board
August 23, 2010 an FDA Advisory Panel turned down Jazz Pharmaceutical’s request to market Sodium Oxybate to treat Fibromyalgia. read story
ABC NightlinePrime and Narcolepsy
“Thursday, August 19: “NightlinePrime” co-anchor Cynthia McFadden explores the brain in love. She follows a remarkable story of love lost and found again after a traumatic brain injury. McFadden also talks to a man who is literally paralyzed by love—a peculiar brain condition that causes his body to shut down when he experiences feelings of [...]
Pepsi Refresh Update
Thank you to everyone who has been diligently voting every day for the Narcolepsy ImmunoChip Project on Pepsi’s Refresh Everything website! Our community did its best to win a grant at the $250,000 level but the competition has proven too great.
Time to give up? NEVER! It’s just time for a new strategy …
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