Europeans Review Possible H1N1 Vaccine -Narcolepsy Link
The European Medicines Agency has launched a review of Pandemrix on the request of the European Commission to investigate whether there is a link between cases of ...
ABC NightlinePrime and Narcolepsy
“Thursday, August 19: “NightlinePrime” co-anchor Cynthia McFadden explores the brain in love. She follows a remarkable story of love lost and found again after a traumatic brain ...
Narcolepsy Network Responds to NIH’s Call for Comments on Revision of Sleep Disorders Research Plan
Advocating on behalf of all people with narcolepsy, and in keeping with our mission to promote scientific research and early diagnosis, Narcolepsy Network submitted the following comments to the National Institutes of Health (NIH) in response to their June 9, 2010 notice, NOT-HL-11-107: Request for Information (RFI): Sleep Disorders Research Plan.
Article – Narcolepsy: Diagnosis and Treatment in the Elderly
In this NN exclusive narcolepsy expert Neil Feldman, MD spells out common factors to be considered in the treatment of narcolepsy in elderly patients.
NIH Seeks Input on Sleep Disorders Research Plan by July 2, 2010
The National Institutes of Health (NIH) is accepting comments from the public prior to updating the existing Sleep Disorders Research Plan, which dates back to 2003. The revised plan, expected to be finalized in June 2011, will establish the priorities for funding of sleep disorders research through 2016 or until the next plan is approved. Narcolepsy Network encourages all individuals with or affected by narcolepsy to respond by the deadline, Friday, July 2, 2010. The strength of our community’s response will indicate to NIH our level of interest in and need for narcolepsy research to be included in the 2011 Sleep Disorders Research Plan. More…
School Nurses Learn About Narcolepsy
May 12, 2010 The Lancaster County School Nurses Association (Pennsylvania) invited me to speak at their annual dinner during the first week of May. This dinner was ...
Running the Boston Marathon for Narcolepsy
In its recent press release Massachusetts-based Wake Up Narcolepsy (WUN) - a nonprofit whose mission is to raise both public awareness and funds for research and education - announced that for the first time ...
Winning with Narcolepsy: Tour de Bretagne
In 2004 the International Cyclists’ Union (UCI) barred Frank Bouyer from competition when he tested positive for modafinil, which he was taking for treatment of narcolepsy. Six ...
Boston Globe Interviews Julie Flygare
New England native Julie Flygare is not letting her narcolepsy-cataplexy keep her from realizing her dream of running the Boston Marathon on Monday, April 19 to raise awareness of narcolepsy. She’s been training for many months in preparation for Marathon Monday. Her efforts to promote local awareness have grabbed the attention of the Boston Globe. View the article.
Carnival Night a Success
Approximately 40 people gathered for an evening of fun, games and refreshments in celebration of Narcolepsy Awareness on March 11, 2010 at Carnival by Bowlmor in New ...
