The Network is a 16-page quarterly newsletter published by Narcolepsy Network, Inc. Each issue contains news, recent developments in narcolepsy research and treatments, regular columns such as Ask the Doctor and/or Ask a Lawyer, patient stories and much more.The Network is an invaluable resource for people with narcolepsy as well as for family, friends and the medical professionals who treat us.

The Network is one of the primary benefits of membership. Dues-paying members receive current issues of The Network by postal mail and may obtain back articles and issues by request. Due to the administrative costs of providing this service, we regret that we cannot fulfill requests from non-members. (Note: Subscribing to our mailing list does not constitute membership and will not result in receipt of our newsletters or any other valuable member-only benefits.)

Certain articles from the older issues listed below are available for online viewing.

INDEX OF ARTICLES from The Network

Summer 2007
-Navigating Narcolepsy in San Diego this October
A preview of speakers, topics, social opportunities and special offerings that, combined, make the Narcolepsy Conference the place to be!
-Research Musings:
Parkinson’s patients lose the same brain cells lost in narcolepsy
Why Do People Yawn?
SSRIs May Cause Bone Loss
-Workplace Giving: Combined Federal Campaign and United Way
-Helping a Sleepy Child Learn
Narcolepsy Network presents to school nurses.
-Educating the Educators: Part II
Continuation of Spring 2007 article.
-Alexander’s Dream Team: Part II
Continuation of Spring 2007 article.

Spring 2007
-Educating the Educators Part I
While Alexander's school team is convinced this second-grader has serious behavioral issues and recommends an inappropriate placement, Mom Kim Foster prepares to educate the school team about his narcolepsy.
-Alexander’s Dream Team Part I
NN member/volunteers Ann Austin and Sue Dambrauskus describe how and why the plan evolved to meet with Alexander's educational team.
-Memory and the Narcoleptic’s Mind
-New European Approval for Xyrem Provides Significant Advance in Treatment of Narcolepsy
-Cephalon’s Nuvigil Receives Approvable Letter for Use in Narcolepsy
-Yale awarded $1.5 Million Grant to Study Hypocretin
-A Word from our Executive Director
-Drowsy Driving Detection
-Ask the Doctor by Quentin R. Regestein MD
A patient with cardiac issues asks about the safety of taking wakefulness medications.
-To Tell . . . or NOT
Informing your employer may stunt your earnings potential.
-Disabled Persons and Poverty
For some recipients, disability benefits are signifcantly below the poverty level.
-Narcolepsy and Donating Blood
-LifeStyles: Managing Mail
-NN 2006 Financial Statements
-Narcolepsy and Commercial Driving

Winter 2007
-New Narcolepsy Awareness Campaign for 2007
-Chattanooga Support Group Celebrates 20th Anniversary
-Research Briefs
Antibodies in Narcolepsy-Cataplexy Patient Serum Bind to Rat Hypocretin Neurons
Cataplexy during Status Cataplecticus Examined and Compared to Normal REM Sleep
Italian Researchers examine Periodic Leg Movements in Narcolepsy versus in Controls and in Restless Leg Syndrome
French Health Minister Seeks To Study Naps
Disturbed Sleep and Heart Trouble go Hand in Hand, Reports the Harvard Newsletter
-Conference on a Budget
-Ask the Doctor - Challenges of Treating Narcolepsy in the presence of Bipolar Disorder
-Through the Looking Glass: The 2006 Narcolepsy Round-Up
-Highlights of NN's October 2006 Dallas Conference
-The 2006 Narcolepsy Round-Up: Photo spread

Fall 2006
-WE NEED YOU! Volunteer opportunties
-Above and Beyond: A Tribute to the late Charles Ilsley
-Research Briefs:
Narcolepsy without Cataplexy; CSF Hypocretin Findings
Altered Skin Temperature Regulation in Narcolepsy Relates to Sleep Propensity
Primary Hypersomnias and Adult ADHD
-Importance of Sleep Hygiene
-Ask the Doctor - What is Idiopathic Hypersomnia?
-Support Groups - Thinking about starting a support group?
-Nuvigil Update
-NetWORKING: Kailey is sleeping
When vibrant 8 year-old Kailey develops narcolepsy symptoms, and an initial misdiagnosis leaves her sleepier than ever, her mother searches for the true cause. Their four-year voyage leads to a narcolepsy diagnosis, successful treatment and a return to daily living as they once knew it
-Alien Visit: Narcolepsy with a dash of humor

Summer 2006
-A Narcolepsy Round Up! October 2006 Narcolepsy Conference in Dallas
-A Word from Our Executive Director
-APSS Meeting
-News and Views
-Discovery May Explain Why PWN Have Difficulty Waking
-Amphetamines and Citrus Juices Don't Mix
-Glaxo-SmithKline Admits to Shortage of Brand Dexedrine 5mg Tablets
-Medi-care or Medi-can't?
-NARCOLEPSY NETWORK, Inc. 2005 Annual Report and President's Report
-Combined Federal Campaign and United Way
-NetWORKING: Addressing Duke's Freshmen Medical Class
- Tricia's Narcolepsy Story
-Narcolepsy and Raising Children Part II: The Toddler Years

Spring 2006
-Narcolepsy Awareness Campaign with Isaiah Washington
-Research Briefs:
-Early Onset Narcolepsy Associated with More Severe Symptoms
-Hypocretin Levels Determine Severity of Symptoms in PWN with Cataplexy
-Measuring Vigilance vs. Sleepiness
-Researchers Pinpoint Brain Molecule's Role in Developing Addiction
-Sex Difference in Body Weight Gain and Leptin Signaling in Hypocretin Deficient Mouse Models
-A Word From Our Executive Director
-Employment vs. HIPAA & Drug Testing
-Ask the Doctor: Will Narcolepsy Keep Me from Becoming a Physician?
-Ask the Lawyer: "Is it true that I don't qualify for disability if there's any job I could still do?"
-NetWORKING: Catching Up with Megan Herickhoff
 An active 16-year old talks about her narcolepsy diagnosis and treatment, keeping up
 with a busyschedule and her passion to spread narcolepsy awareness

Fall 2005-Winter 2006 Special Commemorative Issue
-Twenty Years of Networking
-The Boston Sleep Party Experience: Conference Voices
 Reflections on the 2005 Annual Narcolepsy Network Conference
-FDA Approves Xyrem for Excessive Daytime Sleepiness
-Half a World Away
 Report of the symposium presentation on narcolepsy at the meeting of the
 Interim Congress of the World Federation of Sleep Research and Sleep Medicine
 Societies (WFSRSMS),. held in New Delhi, India, September 22 – 26. 2005
-Workplace Drug Testing
-Will your prospective employer be notified directly of your drug testing results?
-Is the DEA Trying to Eliminate Amphetamines?
-Narcolepsy and Raising Children: Part I – Baby's First Year
-Photo Spread of the Boston Sleep Party, NN's 2005 Annual Conference

Summer 2005
-Research Briefs: Narcolepsy-Related Highlights from the 2005 APSS Meeting
-Prescription Methamphetamine in Narcolepsy: Frequency, Cognitive and Behavioral Effects
-Cataplexy Emotional Trigger Questionnaire (CETQ)
-Sodium Oxybate (XYREM), Alone and in Combination with Modafinil, Produces Significant Improvements in Sleep  Architecture in Narcolepsy
-Role of Hypocretin in Cataplexy Explained
-Upper Airway Resistance Syndrome
-Common Errors in Diagnosing Narcolepsy
-NetWORKING: A Working Model for Accommodations in the Workplace

Spring 2005
-Narcolepsy Conference 2005: NN celebrates Age 20
-Letter from Emmanuel Mignot, MD PhD, Center for Narcolepsy
-Narcolepsy Research Under-funded: Speak out and Advocate!
-People with Narcolepsy CAN make a Difference
-Drowsy? Maybe You're Scared
 Reprint from the American Weekly, July 1944
-Pregnancy and Medications
-My Friend has Narcolepsy
-NetWORKING: Could Brain Allergies be Causing Your Narcolepsy Symptoms?
-On the Lighter Side…The Interview (a poem)
-Traveling with Medications

Winter 2005
-Highlights: 2004 Annual Narcolepsy Network Conference
-Knowing You are Not Alone
-A Word from Our Director
-Xyrem: Some Questions and Misperceptions
-New Year's Resolutions for PWN
-Camp Narcolepsy
 Imagine: a place to send loved ones who just don't "get it"!
-Fifth International Symposium on Narcolepsy
-NetWORKING: A Year of Change and Hope
 A mother's account of her teenage son's narcolepsy diagnosis, the search
 for effective treatments and renewed hope for his future.
-The Epworth Sleepiness Scale

Fall 2004
-"No" Isn't Good Enough
-A narcolepsy patient and his treating physician successfully challenge the
insurance company's refusal to cover the prescribed dosage of Provigil.
-Insurance Denied? Fight Back!
-Remedies for challenging an insurance company's refusal to cover medical services and/or medications
-Letter from Board Member Audrey Kindred, Conference Committee Chair
-Research Briefs:
-Immune suppression therapy in cases of recent on-set Narcolepsy
-A Look at REM Behavior Disorder and Narcolepsy
-Self-Disclosed Mood, Perceived Stigma and Health Status of Young Adults with Narcolepsy
-Behavioral State Instability in Hypocretin/Orexin Knock-out Mice
-From the Doctor: NARCOLEPSY TREATMENT ACROSS THE AGES
-Dr. Ronald E. Kramer discusses the challenges of narcolepsy treatment in younger and older patients.
-2003 Annual Report
-NetWORKING: A mother's advocacy efforts on behalf of her adult son pay off when the legal system fails to  recognize the severity and debilitating nature of her son's narcolepsy.

Summer 2004
-Research Briefs
-Narcolepsy and Idiopathic Hypersomnia in Children
-Body Mass Index and Narcolepsy
-Monkey Business: What a South American Primate Can Teach Us About Narcolepsy
-Food Consumption Patterns in Narcolepsy
-Choosing A Sleep Center
-My Child Has Narcolepsy
-A Run For Better Sleep And Better Days
-NetWORKING: Two narcolepsy patients describe their successes, frustrations and determination to find medication  and lifestyle strategies to improve the quality of their lives.
-Medication Questionnaire
-New And Noteworthy: Clinical Trial Shows Xyrem Effective for EDS
-Donate-a-Car Program

Winter 2004
-Spread the Word: Narcolepsy patient finds Effexor highly effective in treating cataplexy

Summer 2003
-Einstein's Legacy: Formulas for Life
-Ask the Doctor: Why Am I Exhausted All the Time?
-Awakening to Narcolepsy - Rosemary's Story

Spring 2003
-Piecing Together a Support System
-Ask A Lawyer: Not Taking Medication + Driving Accident = Criminal Conviction???
-Ask the Doctor: Does Narcolepsy Worsen With Age?
 Is there ever a circumstance for ordering just an overnight test for the diagnosis of narcolepsy?

Summer 2002
-Ask A Lawyer: Is the Americans With Disabilities Act Becoming Disabled?