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Support Groups

Support Groups | Online Support | International Organizations

How do I find other people near me who have Narcolepsy?

Narcolepsy is a rare disorder that affects one person out of about 2,000 in the U.S. It is vastly under diagnosed, only about one in four cases have been accurately identified. This makes it very unlikely that you have met someone else who knows that they have Narcolepsy.

Below is a state-by-state list of known support groups. If you do not find one in your state, but you live near a state border, look in the list for the adjacent ones. If you still do not find one near you, try the suggestions at the bottom of this page.

Disclaimer

The following list of local Support Groups is presented for the convenience of those using this website. We hope that our Members and others will use the contacts presented here to promote fellowship, networking and the free exchange of information about coping and living with Narcolepsy and other Sleep Disorders.

The opinions, statements, activities, etc. of these organizations, their leadership and members are not necessarily those of the Narcolepsy Network, Inc.

State-by-State List of Support Groups

ARIZONA
Southwestern Narcolepsy Association, Inc.
Serving all areas of Arizona
Location: Mesa, AZ

CALIFORNIA
Narcolepsy Support Group
Area served: Fullerton and Vicinity
Contact: Margaret White, Ph.D.
Tel. (714) 446-7240 or Email: MWhite@Exchange.Fullerton.edu
2006 Meetings: Saturdays, January 21, April 22, Jul 22, Oct. 28
10 am – Noon
Location: Sleep Disorders Institute
St. Jude Medical Center
1915 Sunny Crest Drive
Fullerton, CA 92834

Narcolepsy Network Support Group of San Diego County
Serving the San Diego Metropolitan Area and all of San Diego County
Location: San Diego, CA
Website address: http://www.sandiegodreamcatchers.org

ILLINOIS
Midwest Narcolepsy Support Group
www.wakeupdiet.com/supt_group/supt_group1.htm
Contact: Sarah at 312-498-2381

INDIANA
Indianapolis Area Narcolepsy Support Group
Meets on the second Saturday of every even month 3 -5 p.m.
9240 N Meridian St Suite 330
(middle office building on West side of street turn on 93rd and park in back)
It’s the American Sleep Medicine Office on 3rd floor.
Website: www.narcolepsyindianasupportgroup.com
Kristina Heeter E-mail: narcolepsy_indiana@comcast.com

MARYLAND/DC
People with Narcolepsy and Hypersomnia Support Group of the
Greater Washington DC Area
Meets monthly at the DC Public Library
Martin Luther King Jr. Library
Contact info: SaraiahNaps@gmail.com

MASSACHUSETTS
Boston Area Narcolepsy Support Group
Serving Boston and vicinity
Next Meeting: March 20, 2009
10 am – 1 pm
Massachusetts General Hospital
Yawkey Bldg., 2nd floor, Room 220 
 Boston MA 02114 
Meeting Flyer     Campus Map for Yawkey Bldg.     Directions
E-mail: weezeandmatt@comcast.net

MISSOURI
The St. Louis Narcolepsy Support Group
Serving St. Louis Metro Area
Website: http://pages.sbcglobal.net/stlouissleeper

NEW YORK
Long Island Narcolepsy Support Group
Serving Long Island and surrounding areas
Email sdsmith@optonline.net

Narcolepsy Institute
Serving NY Metro Area
Website: http://www.narcolepsyinstitute.org/

OHIO
Central Ohio Sleep Disorders Support Group
Serving Columbus, Ohio and surrounding areas
Website: http://groups.yahoo.com/groups/centralohiosleepdisorders
NOTE: Group meets from 2:00 – 4:00pm on the third
Sunday of the month at various locations in the Columbus area. Wed. evening meetings will be held from 5:30 – 7:00pm in the first month of each quarter. All are welcome to attend. We are an informal patient support group of people with various sleep disorders who started meeting in 1986. We exist to help each other and anyone interested in learning more about sleep through educational materials, guest speakers, referrals to community services, suggested readings, contact with national organizations, and most importantly, support among our members.

PENNSYLVANIA
Awake In Philly Community Education Group
Serving the Greater Philadelphia metropolitan area (southeastern PA, NJ, DE, MD) Websites: http://www.awakeinphilly.org/
http://www.sleepetimes.net/

WISCONSIN
Midwest Organization of Narcolepsy Support
Moons is the official support group for persons with Narcolepsy, and those close to them, living in or near Minnesota and Wisconsin
Website: moonscentral.net

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Date Created: August 25th, 2009
Last Updated: March 11th, 2010